Week Twelve - Paths not taken (or things I wish I'd known)

I drew a blank yesterday when I sat down to write - there was something there but I couldn't quite see it.  It vaguely came to me as I stared at the ceiling at something-past-midnight so let's go.

I should preface this by saying that it's Diabetes Week (8th to 14th June 2020) and so while this won't entirely depart from the mental well-being stuff I've talked about for the last three months, I was reflecting on my experiences specifically with diabetes more than usual last night.

I was trying to remember how old I was when I got got diagnosed with type 1 diabetes.  I always start by telling myself it was the October of my graduate year at university as I remember it being a fairly isolating experience in many ways.  But that's not true.  The date I mean - it was isolating in a lot of ways.  I remember trying to explain it all to a couple of my course-mates (and fellow 5-a-side colleagues) and how lower GI stuff like Shreddies would help.  "Shreddies - keeps diabetes locked up til lunch" still makes me smile.  But that must have been the start of my third year which was October 2001.

And that means next year will be 20 years with type 1 - half my life.  After that point it'll be something that'll be the bigger part of my experiences, not the smaller part.  Those 20 years without diabetes would always be a static thing, but soon that block of time will become a decreasing minority.

Memes for all occasions

Looking back at the start of this adventure I was woefully ill-placed to deal with it - not that there's ever really a good time to get diagnosed with a chronic condition but still...  A few ridiculous things really stand out from those first few months.  I remember being told to make sure I'd eaten before playing football at university so I'd cram all sorts in before a match and wonder why I was sky high afterwards.  I started off on mixed insulin so there wasn't really a concept (that I'd be told about at least) of correction doses so I just lived with it.

When I switched to basal/bolus a year or so later, that felt like a little more freedom, but I was still walking around with way too little knowledge in my head.  That's diabetes knowledge for those giggling at the back...  While I finally had the tools to finesse my own self-management, I didn't have the understanding.  One unit for 10g of carbs seemed to work, but I'm sure it took years for me to ask what would happen if I did insulin without food and finally understand if my levels were high I could just do insulin to fix it.  Seems so obvious now, but it was alien to me for so long.

And (as I gratuitously wield my crowbar) it got me thinking about other paths I'd not taken because of things I didn't know or was scared of finding out.  Opportunities I didn't take, places I didn't go, girls I didn't ask out, invitations I turned down... all because I was unsure of myself or scared.

I think what it made me realise (at nearly 1am...) is that the stress and anxiety that I've really only consciously started to be aware of has actually been around for a really long time.  Looking back, some "coping" mechanisms have been fairly common over the years (however cringe-worthy they were and how hard they are to let go of), some of the anxiety symptoms probably date back over 25 years.

So I think there are a lot of things I wish I'd known.  All the stuff I've accumulated over nearly 20 (TWENTY) years of living with diabetes would obviously have been hugely beneficial way back in 2001.  But I've been struck again by how much the mental aspects have been so important. Not just in terms of missing out on lived experience, self-confidence or self-esteem, but that overlap with managing the physical bits.

I had a conversation with someone recently about how easy it feels now to instinctively know what my insulin doses should be, and that the textbook answers don't reflect what I intrinsically know to be true about my own care.  But whilst that trial and error, and learning from those mistakes has been tough at times, it feels easy in comparison to understanding and managing things that aren't tangible or don't manifest themselves as physical problems to solve.

I don't know... it makes sense to me, and if you can relate too, that's good.  Happy diabetes week.  Until next time

Stay safe x

Weeks Ten and Eleven - (Im)balance

Predictably I missed last Monday as it was a Bank Holiday and I had a week off.  I missed posting yesterday because I wasn't sure I had the right words to be able to articulate what I wanted to say.   I'm still not sure I do but let's see where this goes eh?

Since I last posed, I've edged a year closer to 40.  Facebook memories see to suggest I'm forever bound to say "older but not wiser - haha" and that absolutely feels true in one sense, but maybe less so in another.

Over the last year, I think StressControl and CBT have taught me some sense of self-awareness that I wasn't really conscious of before.  Whether I'm actually wise enough to be conscious of it in the moments I need to is a wholly different matter.

Absolutely I am Dwight

One of the main themes at StressControl was about how we often judge ourselves more harshly than we would others and are our own worst critic.  At CBT we talked about how powerful meaningful relationships are and how they can make a really positive difference to how we feel.  I guess that latter part at least is familiar to many people right now given that lockdown has many of us distanced from those people we rely on.

I think where I've often felt like I've struggled is in finding those relationships.  I've got a catalogue of reasons why that's the case - you can leaf through that at your own leisure - but I think I large part of it is down to not being able to understand where the right balance (or equilibrium - get some mileage out of that economics degree) is.

But this is where the words dry up a little.  I'm not sure how to get that final point down:

    a) without coming across with an inflated sense of self-importance 

    b) succinctly or 

    c) in any kind of way which actually gets to the heart of what I'm trying to say

I guess the point is that I often feel like I mis-judge what those friend/relationships should look like or what the dynamic is.  Pushing way too hard when there's no need, cutting myself off entirely because it's easier than working through what the middle ground should look like or just driving myself crazy with self-doubt, worry and anxiety.  Where this was bad before, lockdown has made it a lot worse.

Imbalance

I've thought about referring myself back to IAPT but I'm still not sure I'm clear on the thing that would be most helpful so I'm keeping that in my back pocket for now.  I've thought about seeing a GP though that's kind of a nuclear option I'd rather not take.  And there's no way I'm going near a surgery right now in any case.

I think I've got most of the tools and knowledge to be able to make this better (there's the wisdom) but it's still difficult to take that mental step back and use them objectively.  That bit is really hard, and the nagging self-doubt that asks whether I am good enough makes it tougher.

It's ridiculous when you see it like this - but seeing it like this is the tough part

As this blog becomes progressively about mental health and less about diabetes, I probably need to grab food so I don't have a hypo in a meeting later on.

Stay safe x

(And don't worry, I've ordered Lego)

Week One - Listening Through The Noise

What a week eh?

I feel like I've watched enough disaster movies to know that the coming weeks and months are going to be less than ideal, but that we should all emerge blinking into the sunlight looking at a different world.

I'm encouraging Violet to keep a diary through all this because I think we'll all look back on these few months for years and years to come.  I thought I should try an do the same.

Like most people I know, I'm trying to be as sensible as I can be.  I don't have 2000 loo rolls, the only real stockpiles I have are half a dozen partially used bags of cous cous and quinoa (peak middle class eh?) and some Ryvita that ran out in 2016 but still tastes fine.

We've been outside every day but kept well away from anyone else.  I skipped visiting my mum for Mother's Day and I'm on day 8 of working from home.  Given I'm in a higher risk group, I'm only going to the shops when it's absolutely necessary as well.

Social media and the news, things I've always relied on for my own sanity and sense of connectedness are having the absolute opposite effect right now.  I've given up scrolling pretty much anything apart from Instagram and only posting elsewhere occasionally.

I get that people are angry.  Angry at those people ignoring advice.  Angry at those pushing three trollyfuls of shopping through crowded check outs.  Angry at people heading to the pub for 'one last night out'.  I'm angry too.

But I think people are scared.  Fight or flight has never felt stronger for me at times over the last few weeks.  That idea of 'doing what I've always done will mean I'll be OK' is completely out of the window now.  People resort to routine, comfort and self preservation when they're scared and I think that's what people are doing now.

Yes it's selfish, but I think it's understandable too.  People's anxieties manifest themselves differently, whether that's buying 10 bags of pasta, going to the pub or climbing to the top of the moral high ground.  It's all noise we're trying to process to do whatever the right thing is.

The advice means different things to each of us.  DON'T GO OUTSIDE.  SELF ISOLATE.  SOCIAL DISTANCING.  It's panic-inducing, that means people will panic.

I don't think any of us fully understand what this means right now and we're all doing what we can to get by.  I finally found a loaf of bread in the shops yesterday and it felt a little quieter.  Not normal, but not end-of-the-world either.

I don't know what the 'right' thing is.  But I know we need to be kind.  Buy what you need, stay a safe distance from people, don't berate those who perhaps genuinely don't understand, help a friend or neighbour, don't watch too much news or scroll Twitter all day.  Do what you can do and others will follow.

Stay safe, wash your hands